Rare Disease Task Force
Thematic task force/working group in EU
Rare diseases are life-threatening or chronically debilitating diseases which are of such low prevalence that special combined efforts are needed to address them. As a guide, the European Commission uses the prevalence of less than 5 per 10,000 persons in Europe to describe a diseases with a low prevelance.
Bulgaria, Cyprus, Czech Republic, Denmark, France, Hungary, Italy, Luxemburg, Malta, Poland, Slovenia, Spain, Sweden and United Kingdom.
Juliette BLOCH RDTF Scientific Secretariat France firstname.lastname@example.org